When you go to visit a medical professional you're meant to come away feeling better - positive that they'll help you figure out what's going on and how to fix it.
This doesn't seem to be the case lately. I seem to come away from L's appointments feeling frustrated and down, sometimes even judged. Questions, questions, questions and no solutions because nobody wants to make the first move - they're all waiting for someone else to do something first - or because the treatment she needs isn't available where we live. And you think you'll be ok because you've, wisely, taken out the best medical insurance possible for your children just days after they were born and yet they just create more battles and obstacles 'because of her age'.
And so we're left chasing from one health professional to another (because the multidisciplinary team they say she requires doesn't exist where we live OR in the neighbouring county), relaying what he said, she said because communication appears not to be their strong point, listening to numerous different opinions and often left feeling even more confused than when I arrived. And all I want is for all of the medical professionals involved to be on the same page, telling me the same things, giving me the same advice. How am I suppose to know who's right and who isn't? If I had the answers then we wouldn't need to be seeing them.
It's tiring and it's frustrating and it feels like nothing is ever simple right now.
And I think it's time for me to be more assertive, to speak my mind whilst we're in appointments - not to come home regretting the things I didn't say.
L can't speak up for herself, she's 3. As her mum it's my job to look after her and make sure she gets the best possible care and get the help she needs and deserves.
No comments:
Post a Comment