A difficult weekend

It's been quite a tough weekend for L. Her symptoms have been heightened, she's been exhausted and found it really hard to cope with everything.

Everything hurt her - the slightest touch, putting her clothes on - noises irritated or worried her - what's that noise? is her most frequent question, which we hear repeatedly every day - she couldn't bear people looking at her, she couldn't cope with changes or unexpected events, she couldn't bear to take her clothes off once I managed to actually get them on her - despite it being very hot she refused to let me roll her leggings up - Saturday she barely ate, though fortunately today has been slightly better on that front, she didn't manage to walk very far on our trip to the 'princess castle' because she was too tired - fortunately we took our carrier with us so she could ride on my back but getting her into it can be a challenge in itself at times despite her not wanting to walk, she's been wobbly and weak.

And to top it off she fell down the stairs yesterday. Fortunately it wasn't too far and she is fine - a few bumps, but more shock than anything I think (for both of us!). She's a little scared (understandably) of the stairs now and keeps telling me where she got hurt.

So I think a quiet week is in order this week...some quiet play at home with just the family. She saw 2  friends last week and it really took it out of her.

Then back to see the Paediatrician on Friday to see where we go from here.